Baby steps

Chey has grown!! Since September 15, 2010 to Janurary 10, 2011- chey has grown 4.3 cm. For a girl who has only grown 1 inch in 3 years this is huge!!
And we are extremely happy to report no physical manifestations of seizures since July of 2010. This is the longest she has gone since she started having them. I still worry A LOT about when the next one will hit, but I am trying not to and just enjoy the lull!
As for school, she is still struggling. She's still performing reading and math skills at a 2 nd grade level. Her reading comprehension is still at a end of year kinder or beginning of 1 st grade. But she is retaining a little more each semester. Not big leaps, but a little is sooooooo much better than nothing. Or worse.
Her doctors feel her school struggles are this because she is in a constant state of seizures that do not manifest themselves physically. That is why she may appear really hyper or why she may revert to baby talk or behavior. These seizures apparently are different than "blank stare" seizures and harder to treat. Isn't that just what we wanted to hear!!
I just submitted our 2 nd appeal to have United Health Care pay for her MEG. They are still denying it saying that the facility was out of network. I just sent in a 67 page appeal with locations of machines from manufacture sights, an approval letter from them, a note from her pediatrican and from a facilitator at a MEG community for professionals in Finland - where the machines are made. Plus an 8 page printout from the UHC web site of approved radiology facilities & hospitals with the names of the people I spoke with and their "no we do not know what that even is" responses. I can not even tell you how tired I am of my phone!! And web searches!! But I have found out from 98% of the health professionals I spoke with that 3 years ago UHC used to be one of the best insurances. Now they are THE WORST!
At this point I completely agree. Not just with them not paying this bill but they have upped our premiums this year by $120, but they just took her shots off a 90 day supply to a 28 day supply with a higher co-pay, and all our other copays go up. Plus, everytime you call the help line, you get a different person with a different oppinion and no one stands by what they say. It's a joke of a company! Unfortunately for us, it's all Kohl's offers... Sad.
If you have a choice, stay AWAY from UHC!!


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