Chey will be receiving 2 drug tries today. The results sent to her doctor and then at our appointment next week we'll get the results. One drug is in pill for ( yea!!!) the other is in liquid ( boo hiss). Then they will draw her blood every 30 min instead of every 15. ( yea!) AND I just found out that they are NOT giving her the medicines I would give her. They are stimulus that are put in medicines i would give her. The medicines today are testing in super strong doses to see which one stimulate the growth gland.
With these she runs a small risk of blood sugar drops, and her body fighting against the drugs and getting super exhausted. But it's so small a chance they don't even put a percentage on the chance. We like those odds! ;•D
Here's her room today. Definitely feel that I got gipped out of a nice sleep spot during the video EEG.. Check out THIS sleep couch!
Grrrr... Oh well. Pretty sad when you get emotional over a sleep couch in a hospital room.
The nurse had trouble finding her veins. So they brought out this big machine that glowed green and helped him to find it.
The voids the in green are her veins. So he knew where they should be and he poked, fished, and fished and fished and poked and fished and fished and after 2 minutes and tears from Chey he finally found it. And the blood came piping out. Literally. I think he collected as much as came out all over her and the bed! Had to have been the messiest draw I have seen in many years.
This is after he " cleaned". Nice.
Anyway, we've started the first med which goes for 90 minutes and a blood draw every 30 minutes. Then the next is the same but the dose is given thru iv. Then a final blood draw for blood sugar.
Such an exciting day!! We know your all jealous!
Now we are watching Hannah Montana and "enjoying" our stay. I'll post again when we leave...
.... And just as a reminder this test is to help find the right med to help her grow as well as help her in her maturing process.
Thanks for reading. Cheyanne LOVES to have messages left. She likes to hear about who cares about her and who is keeping track of her journeys. Please leave a comment so that I can read them to her.
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Good luck today Chey! I hope everything goes well! :) You're in my prayers sweet girl!
ReplyDeleteWe are praying for you. I hope this works and they can give her the meds she needs to grow strong and healthy.
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