Another day down

Today was a hard day... But fun too. The super smart doctor team figured out that because Cheyanne has been on depakote for 7 years, she is actually experiencing withdrawal symptoms. She is has a constant headache and says her head "feels weird and there is drumming in it". She is shaky, emotional and extremely lethargic. Which they all agree "is normal and expected". They are still decreasing the other medicines. And we are starting to add sleep deprivation and startling her awake at different times. Which "as expected" makes her cry more. Still no seizure activity. Hoping and praying for tomorrow...or quicker if possible.
The good things- she is still LOVING room service. She got hash browns, bacon, chocolate milk, steak, French fries, and Oreo shakes. She gets to "collect" little bendy men on her am trays along with jokes. I thought that it was pretty amusing that we got this joke considering what we are hoping for...
What do you call a cow with a twitch? ..............................
........beef jerky
She got some visitors today and got to meet the sister of a kid 2 doors down. These kids are 2 of a quad set as well as the 2 who suffer from seizures. Chey was sooooo excited to meet another high functioning seizure fighter. AND they have a seizure detection dog... A New Foundland. She demonstrated her ability to ride this dog! ;)


He now randomly comes to visit chey. Which is kinda cool since he sences seizures and has to pass the nurse station to come to us. It gets us all excited when comes down. He has detected seizures up to 2 hours before one hits. So we're thinking that maybe she has had a few very small ones not recognized by me or the techs... So hopefully this is a sign of things to come..
Grandma & grandpa h came with tristin, Ana, and cousins Ella & Hannah. While they were here Liberty and her human came by for a visit.





They were very excited to see each other and all a little nervous to be in a hospital. But it brought chey lots of happiness and a little normalcy to her.
She wants to tell you about the rest tomorrow. She is super tired but wants to write about the rest of her happy times today.
Thank you everyone...

- Posted using BlogPress from my iPhone