The Doctor team came in this morning and have told us they want to capture 3-5 seizures and that we won't go home until that happens. Our stay may be 7 days ... Or it may be longer. We are soooo lucky! No seizures to report so far. They have inserted an iv line just incase. Chey gets so excited when they flush the line. "look mom! I am habing water without drinking it!!"
She is now completely off Depakote (yea! She's been in this for 7 years and can damage her liver as well as it may be the cause of her ADHD and growth slowness - still unknown) she's on 1/3 her normal dose of neurotin and they will be starting the decrease of her trileptal doses tonight. She's lost some color and is kinda spacy. She's complaining of a headache and that her head "feels weird"... The doctors say this is normal for coming off meds. Especially as long as Chey has been on them. We are heartbreakingly praying for seizures. Please join us.
Thank you for reading this and keeping up on her status. It's comforting to know we aren't alone! :•D
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